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CFS| Chronic Fatigue Syndrome

AAAAAAAAAAAHHHHHHHHHHHHHH!!!!!

Posted by amber | My Diary | Posted on July 30th, 2010

Sorry for not checking in yesterday but at the moment I am feeling hellish. Its seems since I have stopped taking Covocort for Adrenal Fatigue the rot has set in!!! My doctor is away for 3 weeks and I am feeling desperate. Plus we are moving house. Well I guess i will have to rest and hope for the best. Sorry this is so short and sweet but I have attached a pic of me when I had the slipped disc for some lite entertainment.

The Physical Basis of CFS by Anthony L. Komaroff

Posted by amber | Meds | Posted on July 28th, 2010

The doctor mentioned above has done quite a bit of research on CFS/ME so check out this website www.myalgic-encephalomyelitis.com/The-Physical-Basis-of-CFS for some good basic information. I know he has done a recording as well of his studies so I will endeavour to find that and include it on my site.

AD, and no it does not stand for Anno Domini

Posted by amber | My Diary | Posted on July 28th, 2010

AD refers to the period after diagnoses. But more of that later .

This charming picture is of me and my two Rottweiler puppies, Alaska and Akino. Looking back now I can see how ill I did look!!!

Anyway, on return from Mozambique I basically went to bed. I was unbelievably tired; nauseous; dizzy; short of breath; shaky; racing heart, etc. And so the endless blood tests began, from tick bite fever to tests for cancer; chest x’rays, urine tests, etc. And so to followed the list of numerous practitioners I saw = doctors, physicians, homeopaths, cranio-sacral therapists ………..  According to the majority of them I was fine – all major organs working, no cancer, no nothing! It really should have made me sigh with relief but it only made me more frustrated. I felt shocking and couldn’t function properly, how could I possibly be fine.

I think most of the medical experts, including my friends and family thought I was depressed. But I wasn’t , it was because I was feeling so awful and couldn’t do anything that I was feeling down. I was depressed because medical science didn’t have a cure. I was sad because I couldn’t go up Lions Head or even walk to the end of the block. And worse, I actually didn’t ‘look’ ill!!!

So more tomorrow as time to get a lie down.

BC: and I dont mean Before Christ

Posted by amber | My Diary | Posted on July 27th, 2010

BC …is before Chronic Fatigue. But where do I start?

I have been mulling this over for sometime now and every time i go to a new doctor, physician, homeopath, etc I repeat the same boring drivel. So…

I guess I need to go back to who I was; the person I want to be again; the person I miss; the person I am starting to forget.

Early 2008 … this was the last time I felt ME. My job was fab; I was really fit and trim. Life was wonderful. In fact I distinctly remember turning to my husband and saying , ” If  I died right now, I could honestly say I am content.” Beware of what you wish for!!!  Well on April 14 I was diagnosed with a C5-C6 slipped disc and surgery was indicated. Now I didnt get this injury doing anything vaguely spectacular, which is truly a tragedy. Anyway I chose bed rest and drugs as I just couldn’t think of surgery as an option. So no driving, no job, no walks in the mountain, no gym, no walking , only anti-inflammatorys and more than enough time on my hands to induce suicidal thoughts. But 6 months later and with the help of the Brave organisation I was celebrating my return to life by swimming with the dolphins in Mozambique. Well I swam with the dolphins but I also got chronic fatigue.

This is the magical Mozambique sunset.

Medicine Woman

Posted by amber | Meds | Posted on July 26th, 2010

Well as you are no doubt aware there is no CURE for chronic fatigue, merely a million peripheral ways of dealing with the fall out. Presently I am on a concoction of omegas, immune support, pro-biotics etc. But more about that later.

This blog does not profess to have all the answers, it is merely a diary of what I have done and what has worked for me. So please, if you have a great remedy, tell me about it.

Check this website out www.chronicfatiguetreatments.com.

First day of official blogging

Posted by amber | My Diary | Posted on July 26th, 2010

Wow, at last I am on. And I need to say thanks to everyone at On Demand for all there help, patience and tireless assistance!! I think they will be happy to see the back of me.

I need to start with my story but at this stage I guess that will have to be tomorrow. I am exhausted from my blogging and twitter lessons!!!

Leopard in Botswana

Posted by amber | Portfolio | Posted on July 26th, 2010

This gorgeous juvenile leopard was found in the bush after 2 hours of searching.

Botswana

Posted by amber | Portfolio | Posted on July 26th, 2010

This baby frog was on the doorknob of our tent!!! Just too cute!

Chronic Fatigue Syndrome

Posted by chronic | My Diary | Posted on July 16th, 2010

Сhronic fatigue syndrome (CFS) is the most common name given to a variably debilitating disorder or disorders generally defined by persistent fatigue unrelated to exertion, not substantially relieved by rest and accompanied by the presence of other specific symptoms for a minimum of six months.

The disorder may also be referred to as post-viral fatigue syndrome (PVFS, when the condition arises following a flu-like illness), myalgic encephalomyelitis (ME), or several other terms. The disease process in CFS displays a range of neurological, immunological, and endocrine system abnormalities. Although classified by the World Health

Organization under Diseases of the nervous system, the etiology (cause or origin) of CFS is currently unknown and there is no diagnostic laboratory test or biomarker. Fatigue is a common symptom in many illnesses, but CFS is a multi-systemic disease and is relatively rare by comparison. Symptoms of CFS include widespread muscle and joint pain; cognitive difficulties; chronic, often severe, mental and physical exhaustion; and other characteristic symptoms in a previously healthy and active person.

CFS patients may report additional symptoms including muscle weakness, hypersensitivity, orthostatic intolerance, digestive disturbances, depression, poor immune response, and cardiac and respiratory problems. It is unclear if these symptoms represent co-morbid conditions or are produced by an underlying etiology of CFS. All diagnostic criteria require that the symptoms must not be caused by other medical conditions.

Studies have reported numbers on the prevalence of CFS that vary widely, from 7 to 3,000 cases of CFS for every 100,000 adults, but national health organizations have estimated more than 1 million Americans and approximately a quarter of a million people in the UK have CFS. For unknown reasons CFS occurs most often in people in their 40s and 50s, more often in women than men, and is less prevalent among children and adolescents. The quality of life is “particularly and uniquely disrupted” in CFS, and full recovery from the condition occurs in only 5-10% of cases.

Whereas there is agreement on the genuine threat to health, happiness and productivity posed by CFS, various physicians’ groups, researchers and patient advocates promote different nomenclature, diagnostic criteria, etiologic hypotheses and treatments, resulting in controversy about many aspects of the disorder. The name CFS itself is controversial as many patients and advocacy groups, as well as some experts, want the name changed as they believe that it stigmatizes by not conveying the seriousness of the illness.

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