Posted by amber | My Diary | Posted on August 18th, 2010
I am in that space which I have for the past couple of days referred to as “The Doldrums”. I am sort of neither great nor crap; neither comfortable or totally at odds; not starving or satiated!@#$#$%#$
I am not sure if all CF sufferers get this but its when you are feeling better enough to get up with a bit of a bounce but not really good enough to actually continue with your life. I also start wondering if I will improve or get worse again … What can I say, always the optimist!!
I love this pic and saying next door because its exactly that for me.
I do all the calming,
correct drug taking stuff and I still am not sure what actually works. But I still keep at it. The human condition is weird!!
The other weird thing about CF is how friends and family react to it. I have probably mentioned before that I don’t look ill and when I am home 90% of the time I am lying down and feeling mediocre to say the least. This they don’t see, so I imagine they go home and think I am an absolute nutter who is depressed and therefore feeling this way. I don’t believe they honestly physically believe I am ill with an actual diagnosed thing. Even weirder is that there is no cure???? I mean quite honestly if I didn’t suffer from this I would probably also say “She needs to see a good psychologist and take an anti depressant!” Friends and family also have short term memory loss with regard to CF. It seems that anything that you sufferer from that lasts longer than a month is not fathomable. So one month down the line they will say, “So ‘you’re better.” Statement.
The other day I was sitting with some friends of mine and the one asked me how I was. I explained the WHOLE story AGAIN. And at the end he said, ” So you’re back at work then.”
Which begs the question “DOES ANYONE EVER TRULY LISTEN!!!!!!!”
On that note a newpice from Pravs World:
Everything Passes By
Everything in life is temporary. Darkness of the night; or a bright day. Even sunrise is temporary; so is sunset.
So if things are going good, enjoy it because it won’t last forever. And if things are going bad, don’t worry. Because it won’t last forever either.
Everything passes by.